General Resources
|
Vulvodynia and Vulvar Vestibulitis
-
There is no standard treatment for patients with vulvar pain since there are
likely multiple causes. Treatments suggested will depend on your individual case. Modifications of treatments and
medication dosages may need to be altered if your symptoms vary. The doctors and nurses at the Center for Vulvar
Diseases will discuss your individual case with you and develop an individual treatment plan based on your history,
prior treatments and severity of symptoms.
|
Vulvodynia & Vulvar Vestibulitis Resources
-
Numerous resources on vulvodynia, vulvar vestibulitis and other vulvar disorders.
|
What is Vulvodynia?
-
Vulvodynia is a syndrome of unknown etiology characterized by chronic vulvar discomfort that can result in both
physical and emotional pain in the lives of affected women.
|
Julie's Vulvodynia Web Portal
- Gateway to extensive resources on vulvodynia, vulvar vestibulitis, and related disorders, including a bibliography
linked to full-text articles.
|
Effective Treatments for Vulvar Pain
- Based on thousands of first-hand reports from women to The Vulvar Pain Foundation during the past five years, a
cluster of major successful treatments has emerged. These are low oxalate treatment, NAG (N-acetyl-glucosamine)
treatment, topical estrogen treatment, pelvic floor muscle rehabilitation using biofeedback, and
guaifenesin.
|
TheFibroidPlace.com
Uterine fibroids can cause painful intercourse, as well as
abdominal pain and other painful symptoms. TheFibroidPlace.com has
information on uterine fibroids, treatment options and a message
board.
|
Living With Interstitial Cystitis
- Living with Interstitial Cystitis (IC) is a challenge which requires creativity, patience and determination. Because
there is no cure for IC or an effective treatment that works for everyone, people with IC discover that they must
seek their own strategies for coping and taking an active role in managing their lives and IC.
|
ICN Patient Handbook
- Great site with a lot of information on interstitial cystitis.
|
Your Guide to The Benefits of Vulvar Self Examination
- If you're not in the habit of doing vulvas self exams...or if you're not sure of the importance or the right way
to do self exams...Find out how a simple self exam of the vulva can alert you to a Problem before serious infection
develops...before cancer develops.
|
Symptomatic Vulvar Burning (Vulvodynia)
- Research paper - somewhat technical.
|
|
Various Medications Used for Vulvar Diseases
- Multiple medications are used in treating various vulvar conditions. The following
information will be helpful to you in understanding the medication prescribed for your particular condition.
|
University of Michigan Center for Vulvar Diseases
- The Center for Vulvar Diseases provides a comprehensive set of services to each individual. Members of our multidisciplinary
staff attend each patient during a visit. The team approach has been created as the basic structure in recognition
of the necessity to provide this intensity of care and expertise to patients who have already demonstrated that
they are afflicted by a resistant and chronic illness, or an unusual vulvar condition.
|
What to look for in Biofeedback Treatment
- A checklist of features that will be found in professionally competent biofeedback therapy. Find out if you've
really "been there, done that".
|
Vulvodynia.com/Products
- This section describes the professional services and products offered by Dr. Glazer. Both patient treatment services
and training information for professional service providers are presented.
|
Lichen
Sclerosus from Estronaut
- Explains what it is, what the
symptoms are and some treatment options.
|
Interstitial Cystitis and Pregnancy
- Many patients with interstitial cystitis (IC) are of childbearing age. This brochure combines anecdotal information
from patients attending ICE workshops, scientific and anecdotal information from physicians and other healthcare
practitioners, statistics obtained in the 1989 study and other issues of concern to IC patients contemplating pregnancy.
|
Interstitial Cystitis and Sex
- Like other chronic illnesses, interstitial cystitis can have a disruptive effect on sexuality and relationships.
This section describes the range of sexual problems that IC patients may have and solutions that have been helpful
to many.
|
Interstitial Cystitis and Diet
- Many interstitial cystitis (IC) patients find that modifying diet helps them control symptoms and avoid flare ups.
This page includes a list of foods that may contribute to bladder irritation.
|
ICN Patient Handbook
- Great site with a lot of information on interstitial cystitis.
|
A
Patient's Guide to Adhesions and Related Pain or...You Are Not Alone
- David
Wiseman, PhD, MR., Pham S
|
Banter with Dr. B - Pelvic Adhesions
- J. Glenn
Bradley, MD
|
Intrauterine Adhesions
- Fact sheet from the American Society for Reproductive Medicine.
Intrauterine adhesions are defined as scar tissue inside the uterine cavity.
In PDF format
|
The
International Adhesion Society
- This site provides a patient
guide, FAQ's, Message Boards, Physician Database and more.
|
| The
Mayo Clinic
|
Adhesions
- One of the many complications that can arise from endometriosis
is the formation of adhesions. These bands of scar tissue can bind organs to other structures, block the tubes
causing infertility, and cause immense pain even after the endo itself has been removed surgically.
|
Medical
Treatment of Endometriosis & Pelvic Pain
- Consultant:
Edward M. Lichten, M.D.,P.C.
|
China
Rose's Endometriosis Page
- Provides information about causes,
stages, diagnosis, treatment and links.
|
| Endo@obgyn.net The Endometriosis Pavilion Forum |
DoctorDirectory.com
- Is the world's most complete and user-friendly physician
directory. More than 500,000 physicians can be located (and directly linked) by city, state or specialty. We also
publish HospitalDirectory.com, HealthPlanDirectory.com and HealthNewsDirectory.com. Service is free to surfers.
|
| Chronic Pelvic Pain / AAFP Patient Information Handout |
| Prescription Drugs Reference Page From Healthsquare |
Women's Health Resource Center
- University of Michigan Videos...Books...Pamphlets...Programs...Advice... Community Outreach from the Women's Health Program
|
A Woman's View
- Located in North Carolina. Contains information on treatment
and counseling services available on a variety of health issues common to women.
|
Invisible Disabilities Advocate!
- Often the most difficult part of having a chronic, debilitating illness, is the lack of support we encounter. People
seem to be programmed to think that they have to see someone is bleeding, before they can believe they are hurting.
Unfortunately, they often ignore what we are saying, because they think we "look" fine.
|
Hystersisters Online
- Hysterectomy information and
support for pre and post op women.
|
ACOG Homepage
- Contains a Physician Directory, tips for Maintaining Wellness,
informative Health Columns and News Releases. Also Patient Education and Women's Issues
|
| Dr. Irene's Get With The Program Self-Help and Info Resource |
Treatment for Dysmenorrhea?
- Women who experience severe cramping accompanied by feelings
of weakness, chills or dizziness as well as pains during the 12-16th day of their cycle, may find that ibuprofen
is the best treatment.
|
Painful Intercourse
- D. Ashley Hill, M.D. Painful sexual intercourse,
called dyspareunia in medical terminology (pronounced "dis-pair-une-ee-ah"), is a common complaint among
women seeking gynecologic care.
|
Painful Intercourse (Women)
- Overview of the causes of painful intercourse in women, and
what to do about it.
|
Endometriosis
Awareness and Information
- This site is dedicated to raising
the awareness of endometriosis.
Hospital and Clinic Listings
University
of North Carolina
"Caring for Women, for Life" Offering extensive
clinical experience in treating pelvic pain as well as having one
of the few centers in the country practicing robotic assisted
laparoscopic myomectomy.
Dr.
Cook's Endometriosis and Pelvic Pain Information Center
THE PAIN
CENTER
- Cedars-Sinai Medical Center.
The
DoctorDirectory.com
- Search by specialty or state and
city.
The
HospitalDirectory.com
- Search by state and city.
Best
Hospitals Finder
- The U.S. News hospital rankings are designed to assist you in your search for
the highest level of medical care. Our online "Best Hospitals Finder" is designed to make that search
even easier.
Pain Management Clinic of
Laredo, Texas
Support Groups and Associations
AAPM
Home-The Official Site of the American Academy of Pain Medicine
- "The mission of the
American Academy of Pain Medicine (AAPM) is to promote quality
care of patients with pain as a symptom of disease (eudynia) and
primary pain disease (maldynia) through research, education, and
advocacy, and through the advancement of the specialty of Pain
Medicine."
Center for Endometriosis
Care | Welcome
International Adhesions
Society
- Are you finding difficulty in obtaining suitable treatment? Do you want to speak
with others with a similar condition. Do you want to promote research and awareness into adhesion disorders? We
have been approached by a number of similarly suffering patients and concerned physicians and we are in the process
of forming the International Adhesions Society
National Vulvodynia Association
- The National Vulvodynia Association (NVA) is a nonprofit organization created
in 1994 to improve the lives of individuals affected by vulvodynia, a spectrum of chronic vulvar pain disorders.
North American Chronic
Pain Association of Canada
- "NACPAC is a self-help organization dedicated to providing support to people
in chronic pain, and to giving them assistance in living their lives to the fullest."
Polycystic Ovarian Syndrome
Association
V U L V A L_P A
I N_S O C I E T Y
- Set up by a doctor and nursing sister, the Vulval Pain Society (VPS) aims to
provide women with vulvodynia and other vulval diseases up-to-date, accurate, non-biased information on treatment.
Vulvodynia.com/Connection
- This section contains several ways for vulvovaginal pain sufferers to connect
with one another, professional service providers, and related websites. The live chat room, broadcast email list
and guest book provide a variety of ways to exchange information. The professional registry can help you locate
treatment resources near you and related links can take you to other websites with information on vulvovaginal
pain and related disorders
Warwick
Valley New York Endometriosis Support Group
Welcome to The
Vulvar Pain Foundation's Website
- The Foundation's purposes are to give hope, support, and reliable information
to sufferers and their families, to advance the standard of medical practice in treating vulvar pain, and to promote
scientific research.
|